Posted on December 18, 2017
As evening waned, I told Earl this was the best day so far since we came home from the hospital five weeks ago tomorrow. My cleaning lady came, which always makes me feel good. But on top of that my arm seemed more supple, and my energy did too. I took a nap, but it wasn’t until 4 PM.
Before that, a friend and I mall walked and then went to KFC, because she knows I’m addicted to that chicken recipe. We probably ate all the calories we’d previously walked off, but it was worth it. Now I’m going to sit by the fire (gas, fueled by a switch) and read and smile. Today was definitely a 9.6.
P.S. I was going to write about our menu for Christmas Day, but it can wait until tomorrow. Physical progress trumps food at this point. AB
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Posted on December 17, 2017
Those who know me, know I tend to anthropomorphize. That is, to take an inanimate or semi-inanimate object and ascribe human characteristics to it. In my cancer world, the most recent example was naming the drain that accompanied me home from the hospital. In reality, what drain has a human name?
I’m at it again. This time I’m naming my weak arm Arm-anda. You may think this is silly, but I find it to be a great coping mechanism. I can separate Arm-anda from the rest of my healthy body and treat her accordingly. I assure you, however, she will not meet the same end that Duane the drain did.
Today was a solid 9.
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Posted on December 16, 2017
The physical therapist came after the drain was out to give me exercises that will increase the mobility of my right arm. If you’ve ever had a frozen shoulder, you have an idea of how limited my arm has become and how important it is to work on that.
There are nine exercises, each to be done at least ten times twice a day. They look easy, but they’re not. For instance, I’m to stand facing a wall and walk my right hand up it as high as possible; then hold it there.
I face the wall where the portrait of Ulysses S. Grant, former Union general and then U.S. President, hangs. His eyes are almost parallel to mine, which means if I were really good at this exercise, my arm would be way above the top of his head. Currently, it only reaches Grant’s shoulder, and I imagine he’s thinking I’m a slacker.
According to the physical therapist, the most important exercise to be ready for radiation is Number Six. Lying on your back, clasp your hands behind your head with elbows pointing to the ceiling. Without arching your back or moving other body parts, now pull your elbows down to the bed or floor. It’s difficult, so I decided not to ask Grant his opinion again.
I am not a slacker; it’s just that four weeks of inactivity have taken a toll.
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Posted on December 15, 2017
No, I’m not running the Boston Marathon on April 16 (four months from tomorrow), but I plan to be there to support my son Kevin who is. It’s his third Boston and also the fifth anniversary of the bombing. It’s his last marathon before turning fifty too.
We chatted today; shared what’s going on in Benton Harbor and Fargo, but really shared what’s going on in our lives. I’m on a self-imposed time schedule to make it to Boston in full recovery. Must get my arm mobile, then do 35 days of radiation, followed by a month or so when the side effects subside, followed by a trip to Boston. I already know it’s a daunting schedule, but I’m up for it.
As we chatted, Kevin said he had been slacking off on his training, given that Fargo this time of year is known for bone chilling temperatures, eternal snow, and insidious ice. None of this is a runner’s friend. So he suggested we tie my goal to be fit for Boston with his to be fit as well.
Marathoners train for a long time before each race; four months represents a short version of a good training cycle. But we plan to motivate each other after the holidays and show up in Boston ready for the challenge. For me, it’s an added incentive in a positive way. I think it is for him too.
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Posted on December 14, 2017
I don’t know what I expected once the drain was out of my life. Wait, yes I do! I expected a great sense of relief that I no longer had to be careful not to dislodge it, that I could wear less baggy clothing that concealed it, that I could sleep in any position I wanted, and that I could move my right arm any way I wanted.
I suppose three out of four isn’t bad, but my right arm is still numb and somewhat immobile. Not raising it more than 90 degrees in any direction for the past four weeks, plus the incision and the drain wound on that side, has made it stiff.
I’m not really complaining; I’m chastising myself for expecting to return to “normal” in one day. Normal will take much longer.
But I did take a real shower and wash my hair this morning, and I met with the home care physical therapist this afternoon. She gave me several exercises that could help my arm become limber again. If you’ve ever had a frozen shoulder, you can relate. I’m motivated because I can’t start radiation (I haven’t even written about that or chemo yet.) until I can put both hands above my head.
New challenges that made today only an 8.
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Posted on December 13, 2017
This blog post is extremely pleased to announce that Anne Brandt and the drain known as Duane have formally severed their relationship. No tears were shed. Anne is resting comfortably at home while the whereabouts of Duane are unknown. Today is a 9.5.
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Posted on December 12, 2017
The several inches of snow we received in the last 24 hours wasn’t a surprise, since I’d checked online to see what the weather would hold. But the rest of the day was filled with pleasant, unexpected delights.
S and I are known for our interest in KFC; in good times we manage to get there about once a week. So today, she showed up with two original chicken breasts and homemade peanut butter cookies. It was the perfect lunch.
Another friend offered to make special cookies for us for Christmas; we just had to tell her what kind. So oatmeal-raisin cookies will be available for our holiday pleasure. Earl and I just have to make sure we don’t eat them all before the other guests arrive.
The personal chef sent her final menu based on my input. It makes me salivate just to read it. I’ll not describe it here, since it deserves its own blog post.
Several friends emailed that they’d been reading my blogs about my cancer experience. It is most encouraging to know others out there relate, because I believe the medical profession doesn’t always do a good job of “humanizing” health problems. That’s what I’m here for.
Finally, today was my aunt’s birthday; so naturally we touched base. She and her husband, both in their nineties, were not feeling one hundred percent; and we commiserated about that. They stayed close to home today, as did I. Hopefully they’ll celebrate tomorrow; and if Duane departs I shall too.
All in all, today was a 9.
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Posted on December 11, 2017
I don’t know what happened but today Duane took a decided turn for the better. All of a sudden, he stopped draining a lot and chose to drain a little. That was this morning around 7:30 AM. We haven’t checked him this evening yet, but if he continues to drain slowly there is a chance he will go his merry way on Wednesday. Please, please pray that Duane is as tired of me as I am of him.
I realize this is only the end of Phase One of this cancer problem, with physical therapy and then radiation to follow. Still, it would represent progress from my point of view. I could then sleep in more than one position, not have to wear concealing clothing, and generally will feel better about myself.
That makes today worth a 9.
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Posted on December 10, 2017
Christmas Eve is two weeks from tonight, and so far I haven’t done a thing regarding decorations, the tree, or dinner. It’s not like me, but then I haven’t been myself lately.
That is, in the physical sense. In the mental realm, I’m me as much as ever, which means as I’m napping these afternoons my mind is planning how to accomplish Christmas with as little effort as possible. I’ve got a plan for the decorations (Do fewer.) and the tree (Get help.)
But dinner for six has had me stymied. Preparing it, even over the next two weeks, feels daunting; and serving it feels equally so. Which led me to contact local caterers for help. Since Christmas Eve is a Sunday and Christmas Day a Monday, the two caterers I called declined. One suggested I contact a well-known local hotel, because “hotels have to feed their guests.”
In fact, their guests included some of my guests, so I was sure the problem was solved. Turns out even the hotel in question isn’t serving on Christmas Eve or Christmas Day at all because “we wanted to give our staff time off to be with their families.”
Randomly I googled “personal chefs in Berrien County,” and that’s how Mindy Kasewurm came into my life. Despite hosting both Christmas Eve and Christmas Day with her own family, she is taking on feeding mine. And we are feasting.
We’re still working on the final menu, but I know it will please the carnivores and the pescatarians, those with allergies and those without, those who want to eat healthily and those who don’t. Most of all, it pleases me.
Today is an 8.
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Posted on December 9, 2017
I don’t reread all my blogs, so forgive me if I repeat myself. And if I do, it’s because the issue is still on my mind. Here are some more things I really didn’t know about the aftermath of a serious surgery.
The sutures itch; but it’s likely not a good idea to scratch. (Is it ever a good idea?) The area around the incision is numb and has been since the operation. This includes part of my upper back as well. The doctor said that would eventually go away. But what month of the year is called “Eventually.”
Duane the drain is still hanging around (Literally) and being as annoying as ever. I’ve gotten better at finding places to hide him in pant pockets or safety pinned to my bra. But he’s ever present. And I’ve learned that when he departs, I’ll still be changing bandages on the site where he was attached to my body.
On the plus side, my surgery was 25 days ago; it occurred to me that the next step – radiation – calls for approximately 35 treatments over six and a half weeks. So I’m using this surgical recovery experience to see what it feels like for the next phase in terms of passing the time. In the process, I’ve learned the meaning of “slow.”
Today was a 7.
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