?`s and ANNEswers

Ten minutes to write. Less time to read.

Diversion

I don’t visit the radiation oncology department on weekends, but the specter of my week day routine still exists. Which is why it’s great to have Buddy visiting for three days. It’s hard to believe he leaves tomorrow morning.

In the meantime, we’ve seen a movie, had more Starbuck’s, stayed up late talking by the fireplace, and generally reconnecting.  Some of my friends met us at Caffe Tosi for coffee and eats this morning; and laughter was as plentiful as coffee refills.

One of the conversations revolved around whose picture would be in the dictionary to represent detailed-oriented people (also sometimes called OCD, but I don’t like that term). My friend, J, nominated her husband for the honor. Buddy piped up and said, “That’s not the picture I have in my dictionary.” He looked straight at me; really, I was surprised.

If there were times one of us got on the other’s nerves, I can’t pinpoint it. One night we had fried egg sandwiches for supper, which is the sort of thing I might have cooked when my children were growing up. That and tomato soup. It was all delicious.

And just what the doctor ordered.

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House Guest

My son, Keith who prefers to be called Buddy, arrived today.  We haven’t had any time together since July, and a lot has happened since then. So since I picked him up at the South Bend Airport around noon, we have talked nonstop over Starbucks and salads before mall walking with my friends and making it on time to radiation.  Then Earl joined us for dinner at Silver Beach Pizza.

We compared notes on our current activities and reminisced about other times in our lives. Like when Buddy was growing up. Or when I divorced Jeff. Or what other family members were up to. Even cars.

Most of my friends would say how great it is to have time alone with one of your adult children without a spouse or little ones around. It’s not that you don’t like the extended family, but a Mom and her offspring have memories the others don’t share. I have always been fortunate that both my sons and I make time together . . . alone.

So Buddy is now in bed, as is Earl. And I’m smiling at a great time today.

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Energy Efficiency

Energy efficiency, according to the Internet, means using less energy to provide the same service. So if I were a lightbulb, I’d be a CFL or an LED. I’m not a lightbulb, but I’m still becoming more energy efficient due to my anticipating “crash” once the side effects of radiation hit. When I succumb to the expected fatigue, Earl’s and my life still needs to go forward.

What does this mean in human terms?

It means I deliberately scheduled my daily radiation appointment for late afternoon instead of first thing each morning.  I’m not a morning person, and I knew I would begrudge the entire process more if it were the first thing facing me each day.

In addition, I gang any errands or meetings to coincide with my daily trip to the hospital for radiation, so I’m not driving here, there, and elsewhere throughout the day. It means my personal trainer makes accommodations to see me in a studio near my home, so I don’t have to drive twenty minutes one way to my health club. And it means I take advantage of Earl’s willingness to grocery shop or pay for a personal chef who does that – and the cooking – for us. The added benefit is that I now have time for those things that really feed my soul.

It’s been an interesting phenomenon and has made me realize how inefficient my previous routine was. And how much time was frittered away by poor planning.

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Random Thoughts

Eight days down; 25 to go. Already, I can see where the routine gets tedious. There’s supposed to be a bell you can ring on the last day. I must check into this and ask if friends and family can come see you ring it.

At one of my sessions I asked what day of the week there was cookies and milk. “If you want cookies,” came the answer, “you’ll have to bring them.” Okay, I shall. Maybe on Valentine’s Day.

The right side of my right breast, as well as my right armpit and right shoulder are completely numb. You could put the proverbial meat fork in me there, and I wouldn’t blink. It’s been this way since my surgery on November 14. Since then I’ve learned that nerves which were cut during surgery are very slow to knit together. Very slow equates to 1/8 to ¼ inch a month. And it’s possible the feeling in these body parts will never come back. I wish I had known this going in. It gets back to my not liking surprises.

And, of course, Earl reminded me that eleven months from today is Christmas Eve!

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Doc Day

Every Tuesday Earl and I meet with the radiation oncologist after I have my treatment. He wants to know if we have any questions, and I can usually oblige. (See previous blog post.) But I suspect his real reason for meeting is to observe if the patients are having side effects and how they’re handling them.

To date I’m lucky. No fatigue, no burning skin, no other irritants. But I’m not so naïve to believe I’ll get out of this without having some of these symptoms down the road. I don’t dread them, especially since they are considerably less debilitating than those associated with chemotherapy.  But I’m someone who loves schedules and hates surprises. So if my doctor could possibly pinpoint the particular day that I’ll want to nap, it would be useful for future planning purposes.

I’m not even sure you’re reading this, Dr. G. But if you are, even making up a date would be helpful. Many thanks.

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Questions

I love to ask questions. I attribute it to my many years as a freelance writer where I had to perfect the art of asking questions that elicited interesting answers without intimidating my subject.

Which is why I’m acquiring the habit of asking one question a day at the radiation oncology department. That’s all I have time for, because the entire procedure is quick. Over the course of six and a half weeks, however, I’ll have a fount of information.

Today’s question was, “Why does the machine make so much noise?” The first time I was “radiated,” I was positive Liam was broken, but evidently that’s his normal behavior. The technicians are probably used to the noises, which they hear from another room anyway.

So I paid particular attention today and here is my assessment. Liam starts by sounding like an electric razor, then moves into a high-pitched sound, before making a noise like the furnace blowing hot air.  Every now and then there are some clicking sounds that make me think Liam is a photographer in his spare time.  And finally, the bed I rest on tends to move a little this way, a little that. It reminds me of being in a car on the roller coaster that is slowly cogging to the top of the first hill.

All this takes about five minutes, and I’m willing to bet it won’t be much longer before I will be as used to the noises as the technicians are.  Still, maybe someone else will find this useful.

Now to come up with tomorrow’s question.

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Super Bowl Date

My friend Judi and I talk every couple weeks.  She lives in Arlington Heights, IL, where I once lived years ago. In fact, she’s lived in the same house since the early 1970s while I have had myriad address changes in the same amount of time.  But we’ve always kept in touch.

Tonight we were catching up, and I recalled how Judi and her husband Hugh used to have Super Bowl parties when the concept was novel, the teams were less hyped, and the commercials weren’t what people tuned in for.

One thing led to another, and the bottom line is that Judi and Hugh are joining Earl and me for a Super Bowl party at our house on February 4. It won’t be exactly like old times (See previous paragraph). But it will suit us.

I’ll be three weeks into radiation, so I could fall asleep in the middle of a touchdown. Or burn the casserole. Or, worse yet, spill my drink. But these are dear friends who will forgive me.

The only thing I should probably check on is what team they are rooting for; although since the Chicago Bears haven’t been anywhere near a Super Bowl since 2006 it could be a moot point.

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One Done

My first week of radiation is behind me, with five and a half more to go. So far, I haven’t experienced any side effects that have slowed me.  In fact, if you believe all I’m doing is thinking about radiation because that’s all I’ve written about lately, think again.  Here are some of the other things I did this past week.

Saw “Paddington 2” with friends and cried my eyes out.  I’m not sure they’ll go with me again if the movie is sad, because I sniffle. Loudly at times. Went back to my trainer, whom I hadn’t seen since my surgery in November. We had two training sessions this past week, and what I learned is how much I’d lost by not working out. Then I mall walked three days with other friends. I am touched that someone is always at the mall when I want to walk. It’s as if there’s a Team Anne out there.

Had a piano lesson and practiced every day while watching a sunset. Both the practices and the sunsets were erratic, but still a pleasure. Also read one book and started another. And today I went to Costco in South Bend with Earl because we were almost out of toilet paper – only 11 rolls left – and he gets snarly about that sort of thing. But now we’re well stocked. We’re also well stocked on green olives too!

So it hasn’t all been about radiation this past week; it’s just that this is the new addition to my regular routine. And when I returned to blogging in November, I went on record as saying this was all about beating the little c. Giving it a Big C name gives it too much power.

Being who you are as much as you can be through all this is how the C gets smaller.

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Escorts

So I asked why it took four people to escort me to Liam’s lair each day. I’m a small woman and have no intention of running away in my purple hospital gown. Turns out, it just happened that way this week, and there is no mysterious or medical reason.

One of the young women is an intern in her last semester at school. She drives from Grand Rapids to St. Joseph and back every week day for her hands-on training. And she receives no pay. Today she was the one who “arranged” me on the table under Liam’s watchful eye while someone else brought the requisite warm blanket.

I’ve come to look at these sessions as mini-power naps, and I was almost asleep this afternoon when the light came back on and my “space” was invaded with various technicians. As I went to change, they said – almost in unison – “Have a great weekend.”

Which, I presume, is code for “Hey, you don’t have to come for two days.”

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Routine

It’s been only four days, but already the routine with Liam is well-established. I show up at 3:30 every afternoon and change into a purple hospital gown. Fortunately I like purple.

Then four people – Are they technicians, assistants, nurses? I don’t know yet – escort me into Liam’s room, which is always quite cold. On the first day, Erica asked if I wanted a heated blanket, but by today she knew I did. It’s now a given part of the procedure. The first day they asked if I wanted music and the lights while Liam worked. By now they know I prefer silence and darkness.

I have no idea what Liam charges for these daily treatments, but he – I assume it’s a he, since I named him – works quickly. I hardly have time for a power nap when the four people return to escort me out of the room. They are always pleasant and friendly, but I wonder why it takes four of them. That will be tomorrow’s question.

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